Upcoming Events

Research and Retreat Weekend 2019!

Yogi Bear’s Jellystone Park Mammoth Cave

Here’s some FAST FACTS on our 2019 R&R at Yogi Bear’s Jellystone Park Mammoth Cave Resort on July 31st 2019 to August 4th 2019

What’s on offer at Yogi Bear’s Jellystone Park Mammoth Cave?

  • Located in the heart of Kentucky's Cave Country, near Mammoth Cave, this Kentucky campground features deluxe cabins, bear dens for large groups, tent sites and RV camping. Activities around the park include exploring Mammoth Cave National Park, or you can enjoy the many onsite amenities including a waterslide, pools, mini-golf and fishing.

When is the reservation deadline for 2019's R&R and where do I book?

  • ·     November 15, 2018
  • ·     Call the campground office at +1 (270) 773-3840 Tell them you are with IMDSA group for dates July 31-Aug. 4th 2019.

Will there still be research?

  • ·     Absolutely!  IMDSA is all about connecting families with the wonderful research teams.  We've decided to remove the presentations in 2019 to open up more time for families to connect. 

Why is the format changing in 2019?

  • ·     We've been listening to our families. You've voiced a desire for a more social atmosphere and Jellystone is a great family friendly location with many all-inclusive activities.
  • ·     It also gives the board more opportunities to regroup in an effort to expand. We have the best families and lots of great ideas to continue hosting our conferences.  Additional board members will help us reach those goals.

What are the accommodations?

  • ·     IMDSA will provide shuttles on Thursday from the two major airports to Jellystone until 3pm on arrival day. 
  • ·     Cabins are equipped with a fully furnished/working kitchen, a bedroom, loft area with additional sleeping spaces, pull out sleeper sofa and a futon.
  • ·     A one-time charge of $30 is available for those who would like linens provided (sheets, towels, blankets, etc.)

General weekend agenda


  • Family reunion night. Cookout hamburgers, hotdogs and mac-n-cheese all provided by IMDSA. Bring a covered dish or donate $10 and IMDSA will take care of it for you!


  • ·     Fun activities around the resort
  • ·     Mammoth cave tour
  • ·     Guys' night out in Nashville, TN
  • ·     Ice cream social provided by IMDSA


  • ·     Research participation
  • ·     Mammoth cave tour
  • ·     Ladies' night out in Nashville, TN
  • ·     Pizza social provided by IMDSA


3 x $21 Challenge

Our challenge to you is to find 3 (or more!) individuals that can give $21 in the name of research. Once they accept, you then pass the challenge down to them and remind them to challenge their friends to challenge others. It is quite simple and potentially game-changing! 

There is very little known about mosaic Down syndrome. The only way to discover what mosaic Down syndrome means for each individual is to conduct more research in all areas of mDs. Please help us as we raise unprecedented funds in the name of research. To find out more information regarding research that has been performed in the area of mosaic Down syndrome specifically, please visit our research page here.

#UdefineU Campaign  
Brainchild of our very own self-advocate Casey Morton is the #UdefineU campaign. Self-advocates from IMDSA and IDSC joined forces to make video blogs defining themselves in their own words. The #UdefineU campaign is the first of its kind and we are blessed to have such a proactive group of people involved. Keep an eye on Facebook and other social media channels during October this year as the second batch of video blogs are released and don't forget to show your support by making a donation.

International Mosaic Down Syndrome Association

PO Box 321, Stow, MA 01775
1-855-IMDSA-21|  Email - President, Brandy Hellard
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