We realize that if your child has been just diagnosed with mosaic Down syndrome, you have many questions and may be worried about what this means for you and your child's future. Or, perhaps you have known quite some time that your child has mosaic Down syndrome and have just found your way to IMDSA. Throughout our site we have included information pertaining to mosaic Down syndrome and the aspects surrounding it. We hope that this information will help answer some of those questions you have right now.
International Mosaic Down Syndrome Association is nonprofit organization designed to provide support, information, and research to anyone touched by mosaic Down syndrome. IMDSA is run by families of individuals with mosaic Down syndrome and professionals interested in helping those with mosaic Down syndrome. Each officer volunteers his or her time to IMDSA to help provide support, information, and research to those affected by mosaic Down syndrome.
We have found that the best way of support is through others who have lived what you are living. Families can help you put your feelings and concerns into perspective and can provide you with a wealth of information. You can meet with these families through our Family Connect program. Also, our annual Research and Retreat Weekend will provide you with a variety of information and support from others throughout the world.
IMDSA can provide you with information on mosaic Down syndrome in a variety of ways.
IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome. We encourage you to explore this website to see the various services we will offer. Below is a starting point:
· Mosaic Down syndrome frequently asked questions
· Connect with other families and individuals with mosaic Down syndrome on our Private Facebook Group
· Biennial Research & Awareness Conference
We at IMDSA realize the only way we will discover more about mosaic Down syndrome is through research. We work with several researchers and are consistently searching out more, so we can provide you with more information on this rare genetic disorder. Through our website, newsletter, and conference we can connect families and researchers together. Please visit our website often for updates on research activities in which you can be involved. During our Research and Retreat Weekend, IMDSA invites researchers to conduct their research on site. This allows researchers to observe many individuals with mosaic Down syndrome and is most convenient for our families.
Please feel free to contact us with your questions or concerns. We are here to help!