Life Experience and Feelings Study

  • 08 Feb 2019
  • 01 Jun 2020
  • location near you

Registration

  • Dr. Brown may be able to travel to your area or you may be able to participate by video conference. Fill out the registration form and we will get in touch with you to find a way for you to participate.
  • Dr. Brown will be at the IMDSA Research Retreat Weekend and will be available to meet face to face for the LEAF study. If you will be attending and would like to participate, please fill out the registration form!
  • The LEAF study will be traveling to Boston to meet with participants. Please fill out a registration form and we will follow up to schedule a meeting once we can identify dates and location. If you live in the Boston area and know other families with children with mosaic DS in the age range of the study, please consider encouraging them to sign up as well!
  • Dr. Brown will be in Nashville, TN in advance of the IMDSA Research Retreat Weekend and will be available to meet face to face for the LEAF study. If you live within driving distance of Nashville please fill out the registration form. We will follow up with you to find a time and place to meet.
  • Dr. Brown is planning a trip to New York to meet with participants. Please fill out a registration form and we will follow up to schedule a meeting once we can identify dates and location. If you live in the New York area and know other families with children with mosaicism in the age range of the study, please consider encouraging them to sign up as well!
  • Join Dr. Brown in Orlando during the Down Syndrome Affiliates in Action conference! Please fill out a registration form and we will follow up to schedule a meeting. If you live in Florida and know other families with children with mosaicism in the age range of the study, please consider encouraging them to sign up as well!
  • You and your family will meet face to face with Dr. Ruth Brown in Pittsburgh, PA from June
    27th-30th, during the National Down Syndrome Congress. If you live within driving distance of Pittsburg, please fill out the registration form. We will follow up with you to find a time and place to meet.
  • Dr. Brown is located at Virginia Commonwealth University and will happily meet with you on campus or anywhere that is a day-trip away. If you are in the Virginia or surrounding area, please fill out a registration form and we will be in touch to arrange a meeting.

Register

Little is known about depression and anxiety in individuals with Down syndrome, and even less in individuals with mosaic Down syndrome. Research examining risk factors associated with depression and anxiety in this population is needed to develop better prevention and treatment programs. 

The LEAF Study (also known as the Depression, Stress, and Down Syndrome Study) is currently enrolling people with mosaic Down syndrome. Our goal is to reach 75 people with mosaic Down syndrome. To make sure that goal is reached, Dr. Ruth Brown is traveling across the country to meet with families. She has several dates and locations already planned. If you don't see a city near you, please fill out a registration form and they will contact you to try to make arrangements. For more information, see the study description below.



Dr. Brown and her research team at Virginia Commonwealth University are conducting a study to develop better of assessments of emotional health concerns in people with mosaic Down syndrome.

You may be eligible to participate if:

  • You are a person with mosaic Down syndrome between the ages of 12 – 45 years old, or
  • You are the parent of a person with mosaic Down syndrome aged 12 – 45,

We are recruiting participants WITH mental health concerns AND WITHOUT mental health concerns.

Participation involves meeting with research staff to complete a mental health interview, answering questions about emotions and experiences using paper and computer questionnaires, and providing a cheek swab and optional blood draw for DNA.

This study is completely voluntary and compensation will be provided.


International Mosaic Down Syndrome Association

PO Box 321, Stow, MA 01775
1-855-IMDSA-21|  Email - President, Brandy Hellard
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