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Cryptic Mosaicism Study – Enrollment Temporarily Paused

New enrollment in the Cryptic Mosaicism Study is temporarily paused and is expected to reopen in late spring 2027.

The study remains active, and IMDSA continues to support this important research aimed at expanding our understanding of mosaic Down syndrome and cryptic mosaicism.

We are incredibly grateful for the interest, participation, and continued support of individuals and families in our community. During this temporary pause, we will not be accepting new participants into the study.

Please check back in late spring 2027 for updated enrollment information and next steps.

Thank you for your patience and for helping us continue to advance research and awareness within the mosaic Down syndrome community.


2023 Kid and Self Advocate Leadership Kamp Registration

  • 30 May 2023
  • 6:00 AM
  • 17 Jul 2023
  • 11:55 PM
  • On-site at the Residence Inn, San Diego La Jolla

Registration

  • Cost is for Kids Kamp for two days. Kamp T-shirt and
    lunch is provided
  • The cost is for two days and lunch will be provided.
  • Cost is for two days plus Kamp T-shirt and
    Lunch is provided on both days.
Registration is closed

                  

By completing this registration form, registrants acknowledge and agree to not hold IMDSA, its volunteers, and/or board members responsible and/or liable for any harm, illness, injury or accident.

Furthermore, by submitting this registration form, registrants acknowledge and agree to not hold IMDSA, its volunteers, and/or board members responsible for any unforeseen cancellations of any scheduled workshops and/or events throughout the R&R conference weekend. 

Registrants acknowledge and agree to the following cancellation policy if said registrant deems it necessary to cancel their registration.

Space is Limited!

Once all spots are filled registration is closed.



Cancellations Fees are as follows:
No Refunds after July 15th

Kid and Self Advocate Leadership Kamp is for age groups ranging from 2 years of age and up to adults. This service is on-site at our hotel and will bring in activities for the children such as games, toys, arts and crafts, videos and books. 

The cost of childcare and Self Advocate Kamp will be $60 per child/person for Thursday and Friday. Camp will be offered Thursday July 27th, 7:15am to 5:00pm and July 28th from 7:15am to 4:30pm. 

*Please Note*

*There is no refund given after July 15th. *

*Registration closes on July 17th, there will be no registration at the door.



International Mosaic Down Syndrome Association

PO Box 321, Grand Haven, MI, 49417
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