mDs Press May 2018

03 May 2018 9:51 AM | Warren Leavens (Administrator)

mDs Press, your newsletter from IMDSA

Uniting Unique People in a Unique World

mDs Press!

May 2018 / Mayo de 2018


    



Awareness Campaign 2018

Campaña de concientización 2018

A huge THANK YOU to everyone for the wonderful support you’ve shown us with this year’s Awareness Campaign. What a fabulous collection of photographs with some truly wonderful individuals – an inspiration to us all! With more than 45 families involved this year it has been the most successful campaign to date and there just aren't enough words to explain our gratitude to those that took part. We can't wait to see what next year brings!

If you’ve enjoyed the campaign please help us to further our mission of spreading awareness and connecting families by donating a little something at www.IMDSA.org/donate

Queremos enviar un enorme agradecimiento a cada persona que nos brindo su apoyo para la campaña de  concientización de este año.  Que fabulosa colección de fotografías de personas maravillosas, una inspiración para todos nosotros!!  Con mas de 45 familias tomando parte este año ha sido la campaña mas exitosa hasta la fecha y no hay palabras suficientes para expresar nuestra gratitud a todos los que tomaron parte. No podemos esperar a ver lo que el próximo año nos brindará.

Si usted disfruto de esta campaña, por favor ayúdenos en nuestra meta de informar, concientizar y conectar familias, envíe sus donaciones a  www.IMDSA.org/donate




Research and Retreat Weekend 2018

Fin de semana de Retiro e Investigación 2018 

You've all heard about the brilliant IMDSA R&R weekends, well this year they are set to be even better! IMDSA and IDSC are teaming up and bringing our events together. So this year, IMDSA's Research and Retreat weekend will also be IDSC's event in Cincinnati! We are very excited about this! It's August 9-12 at the Cincinnati (Mason) Great Wolf Lodge. We hope you can stop by.

Todos hemos escuchado de los brillantes fines de  semana de R & I, bueno, el próximo año será aún mejor!  La IMDSA y la IDSC se han unido para llevar este evento a cabo conjuntamente.  De esta manera el próximo año, el fin de semana de retiro e investigación también será el evento de la IDSC en Cincinnati!!  Estamos muy emocionados respecto a esto! será del 9 al 12 de Agosto en el Great Wolf Lodge de Cincinnati (Mason).  Esperamos que puedan acompañarnos.


Below you will find the details on our group trip including important information and instructions on how to make your family’s reservation.

Here is the key information. Please be sure to take note of the time sensitive dates.

  • Registration: $135.00 for a family and $65.00 for an individual
  • Our Group Name is: INTERNATIONAL MOSAIC DOWN SYNDROME ASSOCIATION
  • Our Group Date (s) is: August 9th-11th 2018
  • Our Group Code is: #1808IMDS
  • Our Room Styles are: FAMILY SUITES – Each room can accommodate up to 6 people and includes passes to the waterpark.
  • Our Group Rate is: $179.99 + tax per night
  • All reservations must be guaranteed with a first night room deposit.
  • Our Reservation Cut Off Date is: JULY 8, 2018

Be advised there are a limited amount of rooms held for our group and are available on a first come basis. Rooms booked after our group allotment has been reached, or after our cut-off date are subject to availability and our rate may no longer apply. To ensure availability, book as soon as possible.

We only have a very limited number of rooms blocked at the room rate of $179.99 a night! Don’t delay, book your rooms today!

To make your family’s reservation:

  1. Call Great Wolf Lodge’s Reservation Center at: 1-866-954-9653
  2. Provide the reservationist our group code: #1808IMDS
  3. Importantly: all reservations MUST be made by: 07-08-2018


Abajo encontrará los detallesde nuestro viaje incluyendo importante información e instrucciones de cómohacer su reservación familiar.

Esta es la informaciónimportante, por favor tome nota de las fechas clave.

  • Inscripción:$135.00 POR FAMILIA Y $65 por persona.
  • El nombre de nuestrogrupo es: INTERNATIONAL MOSAIC DOWN SYNDROME ASSOCIATION
  • La fecha denuestro grupo es: Agosto del 9 al 11 de 2018
  • El código denuestro grupo es: #1808IMDS
  •  El tipo dehabitación a escoger: SUITE FAMILIAR-Cada cuarto puede acomodar hasta 6personas e incluye pases al parque acuático
  •  La tarifa degrupo es: $179.99 + impuestos
  •  Todas lasreservaciones se deben garantizar con un depósito por el valor de una noche.
  •  La fechalímite para reservar es: Julio 8, 2018

Tenga en cuenta que hayun número limitado de habitaciones reservados para nuestro grupo y estándisponibles a los primeros que reserven. Las habitaciones reservadas después de que el cupo de nuestro grupo sellene o después de la fecha limite estarán sujetas a disponibilidad y la tarifa especial puede no aplicar. Paraasegurar la disponibilidad, reserve cuanto antes.

Solamente tenemos pocashabitaciones con una tarifa asegurada de $179.99 por noche! Haga su reserva hoy,no se tarde más!

Para hacer su reservaciónfamiliar:

  1. Llame alcentro de reservaciones del Great Wolf Lodge al 1-866-954-9653
  2. Utilice elcódigo dedicado a nuestro grupo: #1808IMDS
  3. Importante:Todas las reservaciones deben hacerse antes del 8 de julio de 2018.





Depression, Stress, and Down Syndrome

Multi-method Approach to Assessment

A Research Project by Ruth Brown, PhD, Virginia Commonwealth University

The International Mosaic Down Syndrome Association is excited to announce the launch of a new research project focused on stress and depression in people with mosaic Down syndrome. The project is the work of Ruth Brown, PhD, a Research Associate at Virginia Commonwealth University. The results of this study will help families and individuals obtain correct diagnosis and appropriate treatment which would otherwise go undetected.

 Dr. Ruth Brown

When asked about her work Ruth said, “I attended my first IMDSA research retreat weekend in 2013 at the invitation of Dr. Jackson-Cook, and shortly after we began developing a grant proposal to study stress and depression with people with mosaic and full Down syndrome. I’m so pleased that after years of perseverance and the continued support of the IMDSA, the project has finally been fully funded! I'm also excited to work with some really great people on the project, including Drs. Colleen Jackson-Cook, Ananda Amstadter, and George Capone.

My motivation for this project stems from previous research that shows that people with Down syndrome are more likely to experience stress and depression than the general population, but are less likely to be properly diagnosed and receive appropriate treatment. The goals of this study are to improve existing patient-report tools for screening and diagnosing stress and depression for use with people with mosaic and full Down syndrome and to see if we can identify biological markers of stress and depression. Improving the identification of stress and the diagnosis of depression is vital to improve the state of research and treatment of mental health of people with Down syndrome.

Thank you for your continued support and I look forward to seeing you at a future IMDSA Research Retreat!”

Ruth Brown has been a long-time supporter and friend of IMDSA and we are delighted that she has successfully secured the funding to make this study a reality. Ruth will be able to start collecting new data at this year's Research and Retreat Weekend in Ohio.





Family Connect Group - Volunteers needed!

Necesitamos voluntarios para el grupo de Conexión Familiar!

Here at IMDSA we know just how hard it is to find someone to connect with whose lives have been touch with mDs and that's why we have our Family Connect program. The program allows you to connect with other families that live in your area, to chat, to share experiences and to grow together. We are looking for volunteers to help further this aim and would love to expand our program. You’ll be given lots of support from the IMDSA team and can take things a step at a time so there really is nothing to fear if you get involved. If you’re interested in taking part please get I touch by clicking here

Aquí en la IMDSA sabemos qué difícil es encontrar y contactarse con alguien cuya vida ha sido alcanzada con el síndrome de Down Mosaico y esa es la razón del programa de Conexión Familiar.  El programa le permite conectarse con otras familias que viven en su área para conversar, compartir experiencias y crecer juntos.  Estamos en la búsqueda de voluntarios para ayudar más profundamente a alcanzar nuestras metas en la expansión del programa. Recibirán un apoyo total de parte del equipo de la IMDSA para poder así llevar las cosas paso a paso, por lo que no hay realmente nada de que deban preocuparse si se involucran. Si está interesado en formar  parte, por favor póngase en contacto haciendo clic aquí.


Self-Advocate Leadership Council

Auto-Defensores, Concilio de liderazgo

The next SALT meeting will be on Saturday, May 12th at 10 a.m. EST.

La próxima reunión de SALT será el sábado, 12 de Mayo a las 10 a.m. EST.



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Pictured above: Micah is modeling our brand new t-shirt! mDs Awareness ribbon, available as a magnet or decal. mDs Euro style car magnet.
Click here to shop online now!

Haga clic aquí para comprar en línea!


Staying in Touch
Permaneciendo en contacto

International Mosaic Down Syndrome Association
PO Box 321, Stow, MA 01775, USA
HOTLINE: 1-855-IMDSA21
http://www.IMDSA.org

Like what we do? Que nos gustaría hacer? 

Please support the work the IMDSA does by donating here

Por favor ayude a la IMDSA a seguir trabajando donando aqui

Copyright © 2012 International Mosaic Down Syndrome Association. All rights reserved.
Contact email: president@imdsa.org


International Mosaic Down Syndrome Association

PO Box 321, Stow, MA 01775
1-855-IMDSA-21|  Email - President, Brandy Hellard
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