Life Experience and Feelings Study

                                                

                                             

Little is known about depression and anxiety in individuals with Down syndrome, and even less in individuals with mosaic Down syndrome. Research examining risk factors associated with depression and anxiety in this population is needed to develop better prevention and treatment programs. 

The LEAF Study (also known as the Depression, Stress, and Down Syndrome Study) is currently enrolling people with mosaic Down syndrome. Our goal is to reach 75 people with mosaic Down syndrome. To make sure that goal is reached, Dr. Ruth Brown is traveling across the country to meet with families. She has several dates and locations already planned. If you don't see a city near you, please fill out a registration form and they will contact you to try to make arrangements. For more information, see the study description below.

Dr. Brown and her research team at Virginia Commonwealth University are conducting a study to develop better of assessments of emotional health concerns in people with mosaic Down syndrome.

You may be eligible to participate if:

You are a person with mosaic Down syndrome between the ages of 12 – 45 years old, or

You are the parent of a person with mosaic Down syndrome aged 12 – 45,

We are recruiting participants WITH mental health concerns AND WITHOUT mental health concerns.

Participation involves meeting with research staff to complete a mental health interview, answering questions about emotions and experiences using paper and computer questionnaires, and providing a cheek swab and optional blood draw for DNA.

This study is completely voluntary and compensation will be provided. 


Life Experience and Feelings Study

  • Start - 08 Feb 2019
  • End - 01 Jun 2020
  • Location – various locations near you

 

Registration

Meet face to face in Denver, CO. June 10 - 12

You and your family will meet face to face with Dr. Ruth Brown in Denver, CO. If you live within driving distance of Denver please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in Los Angeles, CA June 7 - 9

Dr. Brown will be in Los Angeles, CA and will be available to meet face to face for the LEAF study on or off site. If you live within driving distance of Los Angeles, please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in Michigan April 4 - 6

Dr. Brown will be attending the NDSS Adult Summit in Detroit, Michigan and will be available to meet face to face for the LEAF study on or off site.

If you live within driving distance of Detroit, please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in Pittsburgh, PA June 27th-30th

You and your family will meet face to face with Dr. Ruth Brown in Pittsburgh, PA from June
27th-30th, during the National Down Syndrome Congress. If you live within driving distance of Pittsburgh, please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in Portland, OR. June 2 - 3

Dr. Brown will be in Portland, OR and will be available to meet face to face for the LEAF study on or off site. If you live within driving distance of Portland, please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in San Francisco June 4 - 6

Dr. Brown will be in Seattle (Bellevue), WA and will be available to meet face to face for the LEAF study on or off site. If you live within driving distance of San Francisco, please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to face in Seattle, WA May 29 - June 1

Dr. Brown will be in Seattle (Bellevue), WA and will be available to meet face to face for the LEAF study on or off site. If you live within driving distance of Seattle please fill out the registration form. We will follow up with you to find a time and place to meet.

Meet face to Face in Virginia - Any time!

Dr. Brown is located at Virginia Commonwealth University and will happily meet with you on campus or anywhere that is a day-trip away. If you are in the Virginia or surrounding area, please fill out a registration form and we will be in touch to arrange a meeting.

Please follow this link to book your place.


Donation goal

75%
Collected: $7,530.00
Goal: $10,000.00


International Mosaic Down Syndrome Association

PO Box 321, Stow, MA 01775
1-855-IMDSA-21|  Email - President, Brandy Hellard
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